Syringomyelia Awareness Month

May is Syringomyelia Awareness Month

Syringomyelia Awareness Month takes place in May. Syringomyelia is a neurological disorder in which a syrinx, a cyst filled with fluid, develops inside the spinal cord. The expansion of the syrinx stretches the spinal cord and damages the nerve tissue. If left untreated, it can lead to paralysis. The symptoms of syringomyelia vary from person to person, and these symptoms often resemble those of other illnesses. Common symptoms include pain in the neck, upper back, and shoulders. Other symptoms are numbness in the limbs, and the inability to feel hot or cold. Syringomyelia has no cure. Wear a blue ribbon for Syringomyelia Awareness Month.

Personalized Cause offers blue enamel awareness ribbon pins, blue fabric ribbons, and blue silicone awareness wristband bracelets in both non-personalized and personalized versions. Each calls attention to this important awareness month.

Wear Blue During Syringomyelia Awareness Month

As far back as the 16th century, physicians had observed the presence of cavities within the spinal cords of cadavers. However, it wasn’t until the 19th century that several European doctors began investigating this strange condition. Dr. Hans Chiari, an Austrian pathologist, was one of the leaders in this movement. His studies on malformation of the brain stem and cerebellum led to a deeper understanding of syringomyelia. Like many other doctors at the time, his observations came from the study of cadavers during post-mortem. Chiari noted that malformations in the spinal cord were the primary cause of syringomyelia.

Chiari Malformations and Syringomyelia

These malformations, called Chiari malformations, were categorized in order of severity. Chiari observed that these malformations were an extension of brain tissue. It goes through the hole at the base of the skull and into the spinal canal, obstructing the flow of cerebrospinal fluid and causing a build-up of cysts. His findings are still used by doctors today. We now know that roughly 90% of syringomyelia cases are a result of Chiari malformations.

MRI’s Advance the Diagnosis of Syringomyelia

The advancement of magnetic resonance imaging (MRI) technology in the 20th century brought about a revolution in the diagnosis of syringomyelia. This technology produces precise images of the spinal cord using radio waves and a powerful magnetic field. Doctors can now observe syrinxes in real time, track their progression, determine their exact location, and monitor their growth. Although there is no cure for syringomyelia, modern medicine has advanced to the point where there are treatments available to help manage the condition, including surgical procedures. During Syringomyelia Awareness Month, we reflect on the long journey of discovery, research, and innovation in understanding this condition. We also acknowledge and recognize the individuals who suffer from this rare condition.

Syringomyelia Awareness Month Facts

• Prevalence of Syringomyelia – Approximately 0.008% of the population is affected by this disorder.
• It affects men disproportionately – The reasons for syringomyelia being more prevalent in men than women are currently unknown.
• Syringomyelia affects animals too – Cavalier King Charles Spaniels, like other dogs, can also be affected by syringomyelia.

Why Is Syringomyelia Awareness Month Important?

Syringomyelia is an uncommon ailment with symptoms that are similar to those of many other conditions. As a result, few individuals are aware of it. During this season of awareness, health providers and syringomyelia sufferers draw attention to the condition and educate people on its causes and symptoms.

It’s common for someone suffering from a serious neurological disorder to feel isolated, especially if their condition isn’t as well known as other conditions. Affected individuals receive much-needed emotional support and attention during Syringomyelia Awareness Month. During this month of awareness, those affected have the opportunity to advocate for syringomyelia policy and treatment. Organizations concerned with this condition can work together to raise funds for projects that benefit people suffering from syringomyelia.